Wednesday, August 24, 2011

Getting Natalee Back

Today was our follow up with Dr. Waddington. Have I mentioned how much I delight in his way with our family? Do you believe God puts people on this earth to give you a peek into what it must have been like when He performed miracles? After our experience I sure do!
So, if you don't know the history of our story you better backtrack and read, "Meeting Dr. Waddington."

So for those [3 or 4] who are interested let me recap today's follow up appointment. Today Dr. Waddington's "real" nurse was there--she was helping family after a car accident last time so we didn't meet her. She was quite lovely and very interested in Natalee's story. I recapped it for her and we waited only a few minutes before Dr. W. came in. He greeted us but immediately began speaking to Natalee. Now, if you know Natalee well you know that when you are trying to carry a conversation with her she usually either (a) repeats snippets of things we've taught her to say, mostly at the right time but a little awkwardly or (b) has to be prompted to respond at all...and not out of shyness by simply for lack of understanding to give and take of a conversation. Last time we met Dr. W Natalee exhibited both a and b conversational skills but mostly b. He might have said, "Natalee, how are you feeling today?" and I probably waited about 5 full seconds and then prompted, "Natalee you should say, I'm feeling okay thank you," or something to that measure. Last time we were there she was what we would have called, "typical Natalee." Quiet, perhaps a little sing-song-y, cheerful, still. This time she walked right up to him, climbed on the exam table [by HERSELF!] and said, "I'm feewing [feeling] pretty good." When he asked, "What have you been doing at home lately?" she processed by herself and responded, "playing kitchen and playing outside!".
He then asked me how we felt she was doing, although I could already tell he was seeing the huge differences we'd been noticing, and asked if I could list specific differences we'd picked up on. CAN I?
  • Walking up and down stairs with a handrail instead of crawling up/sliding down on bottom.
  • Thinking her own thoughts AND expressing them, including increased defiance (which sounds bad but really isn't; for example, "Natalee it's time for bed." "No, I'm NOT going to bed; I want to ......") It's not that we allow this defiance but it is good that she's expressing her wants and needs.
  • Increased decision making ability without being shown tangible items (example: "Can I have orange juice?" instead of saying "Can I have a drink?" and then me having to show choices for her to pick from and encourage her to make the choice. She's even specifying what type of juice she wants or that she wants icy water or milk.
  • Increased sentence length
  • Less of the rote memorization social skills that we've taught her coming through--more natural thoughts and socialization
  • Awareness of her body and it's abilities--2 days ago she climbed on the TV stand. While we were astonished and did make her get down we were also proud b/c that's the first time she's recognized that she is able to do that by herself.
  • Sense of humor
  • Attention to detail of things
  • More consistence bowel movements
  • Increased independence
  • Increased understanding of pre-academics: rhyming, counting, reading books
  • Sleeping ALL night...shortening her 1 daytime nap
  • Asking questions about things, including beginning to use the word "why"
In essence, in 2 weeks, Natalee is a "new" child. It's as though she'd been operating with a 40 watt bulb this whole time when her socket was capable of handling 100 watts.

I just have to say, as a mother, knowing your child isn't feeling her best and not being able to help her is heartbreaking. Knowing that to the 'naked eye' of society she appears semi average and feeling like people are scoffing at you and think you are digging for what's not there when you take her to doctor after doctor and try remedy after remedy...that's humbling.
Sitting in a doctor's office today and having the doctor tell you this, "When I first met Natalee 2 weeks ago she appeared to me to have PDD [which is on the autism spectrum]--mild or maybe moderate {insert my jaw drop here}. But now, just 2 weeks later she seems to be on her road to recovery. My conversation with her today was much, much different than last time you were here. Now [with the adjustment and salt treatments] she's able to just be a 2 year old. You've given her all the genetics and tools to be a very bright little girl. Now that she's feeling better I wouldn't be surprised if she soon becomes above average and is top of her class. You have your little girl back."

Back? I didn't know she was gone. But these last 2 weeks have shown me the real true Natalee--the feeling good, take on the world Natalee instead of the never feel great, always need sleep, get through the day little girl whom we loved so dear but wanted better for. Did I suspect she was on the spectrum? Maybe a little in my gut. I know what it means to have to feed kids answers and listen to them spew them out at the wrong times. To see them get upset at transition times. To want to know what's coming. (I also suspect Natalee's mother is on the spectrum...these things all apply to her, too). But to see the change...to know that a month ago I was fully prepared to make a special education referral for her when she turned 3 and now feel like that's not necessary...that's our own little Lancaster, MO God given miracle.

Sunday, August 14, 2011

Do It Yourself

I'm feeling "do it your-self-ish"...
tomorrow I'm making homemade dryer sheets (cheap, cheap, cheap) & homemade dishwasher soap. But on my more involved list of things to try someday....

Valentine's Day Love Bundles
http://moneysavingmom.com/2011/02/do-it-yourself-valentines-day-love-bundles.html

Natural Mosquito Spray
http://www.icanteachmychild.com/2011/06/make-it-natural-mosquito-spray/

Rain Gutter Book Shelves
http://www.mustlovebabies.net/2011/07/rain-gutter-bookshelves.html


I'm intrigued by:
Homemade Vanilla
http://moneysavingmom.com/2011/01/do-it-yourself-homemade-vanilla.html

Wednesday, August 10, 2011

Meeting Dr. Waddington

My blog title sounds like a book. :)

We had such a positive experience at the doctor today that I HAD to blog about it and share with others. There are still doctors out there who believe in the power of alternative treatments and don't push pills. What a relief!!

A week ago I saw an ad in the paper for the new Dr. Waddington at Memphis Medical. After reading the ad I was so very compelled to make an appointment for Natalee that I did--right then and there. Strange for the planner in me but I felt prompted to just do it. The phrases in the ad that most piqued my interest for our little gal were "specializes in neurological and developmental disabilities" and "pain management." I just really felt like he might understand Natalee and be able to help her.

Here's the thing about Natalee--to the "naked eye" she appears fairly typically functioning. For the most part she is. However, in areas we thought she was caught up in, we are now again seeing delay (physical ability, processing speed, communication skills). She's developed a stutter ("I wanna, I wanna, I wanna, I wanna, I wanna...play cars"), her baby brother passes her on the stairs, much of what she does say are direct quotes of information we've taught her previously (which sounds great unless she says them at the wrong time), and her "think time" to follow a command is getting longer and longer. At night she fights constantly moving legs and tight spasms in her ankles. She fatigues easily and seems "delicate." It sounds like I'm picking on her, huh? I'm really not. There's so much she does wonderfully--she loves her baby brother, she's a good helper, she's a good eater, loves to color and read, is quick to learn with direct instruction, she's mostly cooperative... That said, I'm a firm believer in the power of early intervention. I'm not a "wait and see". Let's not wait and see if her hours of sleepless nights because her muscles are tight and spasming go away or she "outgrows" them...let's try to help her NOW. Let's not wait and see if her stutter gets better on it's own (when we could actually be allowing her to ingrain it further)--let's talk her through it now and help her move past it.

Anyways...

I made an appointment. And 2nd guessed myself the whole time we were in the waiting room. My inner conversation, "this was really silly...he's going to tell me she's "fine" & that I'm overreacting...I shouldn't have come...he's going to want to write her a script for the rest of her life and I'm going to have to tell him no...."

And when he came in the first thing he did was ignore me and talk to his patient. Score 1, Dr. W. Then he said hello to me and asked me to tell him, MYSELF, about Natalee's history--her birth, her ears, her allergies, her delayed development, where she is now. Score 2, Dr. W. And he LISTENED to every word. He didn't make me feel silly because she's mostly typically developing with these few hard quirks we can't get past. He didn't dismiss me. He cared. 3 point shot, Dr. W.

Then he had Natalee lay down while I sat right with her (gave me his seat so I could be part of the process) and started manipulating her. Immediately found a huge knot at the top of her spine, tightness in both sides near her ears, some chest and shoulder issues he worked on. While he worked (for 30 minutes) on her alignment and tight areas he visited. And the more we visited the more things he pulled from me and started pinning together. Then he asked if I'd ever heard of Restless Leg Syndrome. And I thought, "oh great, here comes the prescription for lifelong meds and another diagnosis." Wrong. Here came an explanation of how muscle spasticity and RLS often are connected--some problems that come from the brain development (she did have a tightness in her skull he felt was preventing her brain from growing...now that he's stretched that area it's just like us filling the empty file drawers--mommy has work to do!) and some problems that usually come from a magnesium deprivation. Ummmm, magnesium? Okay. Apparently magnesium is very important for complete muscle relaxation--without it people often experience RLS and, when coupled with a brain malformity or damage, a more serious condition (for example, muscle spasticity).

Not having anything to lose I bite the bait (he's got me VERY interested by this point, and is still manipulating Natalee)--how do you get magnesium? Leafy green vegetables and nuts....and I'm thinking, "oh crud...how am I going to get her to eat those? nuts maybe, green leaves.....nada." And then he says...(drumroll), magnesium can also be easily obtained through Epsom salt. Put a pound in her bathwater tonight--we'll see immediate results...may not completely "fix" her spasms but she'll feel better. Do it again tomorrow and she'll feel that much better. 4 times a week until her levels are up, then 2-3...maybe forever. She could have magnesium shots but he didn't recommend it unless the less invasive suggestion (salts) doesn't completely alleviate her symptoms. Couple the magnesium with plenty of sunlight because she needs Vitamin D to absorb the it into her blood and then bones...add in manipulations to keep her aligned (which we may someday be able to dwindle or phase out)...and we may very well have a whole new child. He said in his limited years of practice he's helped 25-30 people who are in complete remission from RLS. Seriously? That's it? Magnesium & sun...maybe an adjustment once in awhile? Slam dunk, Dr. W.

I'll admit--it sounds too good to be true. But he was so confident...not haughty or know-it-allish...just confident that he thought he could help her, that I feel very trusting of his knowledge. So we left without a prescription (YAY!), grabbed some Epsom salt and dumped a pound in her bath water, let her soak 20+ min, lotioned her up well when she was done, and sent her to bed. Now, we'll pray it's true, try not to be frustrated at the doctors (including the neurologist that we loved) that dismissed us and didn't tell us about the power of a simple thing like MAGNESIUM, and thank God for Dr. Waddington.

I'll try to update in a week or so and let you know how it's going. Be excited...we're feeling VERY encouraged!